Showing posts with label blood. Show all posts
Showing posts with label blood. Show all posts

Tuesday, January 8, 2013

All is well

I've actually been feeling good for a while.  I was really skeptical that Humira was going to work.  Especially since nothing else did.  But once a week Humira is working great.  I have no symptoms and no side effects.

This is what the syringe looks like, but it's not my picture.

My dad (after mucking with Pentasa dosages and ending up in the hospital) has been taking Humira twice a month, and having very good results too.  He's having a couple minor side effects, but is happy with the results.

I'm not looking forward to buying my first dose of the year, since my drug deductible has reset, so it'll cost $250-300 for the first dose, but then $35 a month after that.  I'm pretty pleased to have such a low drug deductible.

Actually I'm pleased with my insurance in general.  I often thank God for my insurance.  It costs almost $300 a month through my employer (I work for a small company), but it's very worth it.  Especially since I never know when I'll need specific care.

Oh, and other good news.  My blood work is completely normal.  Every test was well within range!

And the better news, if I can stay well for a few more months, I'll have the all clear to start trying to get pregnant!     

Thursday, October 4, 2012

Calm before the storm?

Nothing much to report on the Crohns front right now.  Just a couple quickies:


  • 2.5 more weeks of Prednisone and I'm done!  Yay, yay, yay!  I've (thankfully) stopped eating everything in sight.  There are only 2 remaining side effects: bloat and hair.  I'm retaining water like no one's business.  My fingers got so fat I stopped wearing my rings.  My face is still a little puffy.  And the 8lbs I worked so hard to lose are back.  Some of that is water, some is fat, from me stuffing my face.
  • As of last week, my ALT was almost back to normal.  The range high is 36, and I was at 42.  I did another blood draw today, so hopefully it'll go down more.
  • And, the best news of all, I got my Adderall back!  So now I'm not tired all the time.  Yay!

Thursday, September 13, 2012

Quick update

I've been taken off most of my meds.

My ALT levels (which should max out at 36) are at 278.  Something in my liver isn't happy.

I'm down to Humira, Celexa and Prednisone.  No more Asacol, 6MP, Adderall or Pepcid.

I'm concerned that a major flare up is just down the road.  But I'm more concerned about dying from a non-functioning liver.

I just had a blood draw on Wednesday.  I have to go back and do another one tomorrow at 6.15am.  Then we go from there.